Heart failure symptoms easy to miss for unsuspecting patients – Chicago Tribune

“I have hardly been sick a day in my life. I take vitamins, try homeopathic remedies and have a great immune system,” says Kilian, 53.However, little did she know while treating her flu/bronchitis symptoms at home in November 2013, that she would end up in the hospital for nearly three weeks.”

Over the winter, I just wasn’t getting better,” says Kilian. “I was having trouble breathing and was starting to feel like I was gaining weight from eating healthy foods to keep my strength up. But, in reality, I was retaining fluid from heart failure.”

Kilian said that her water retention started out slowly, but it became more rapid as her symptoms progressed. Eventually, her brother, who lives in Naperville, brought her to the Elmhurst Memorial Hospital Emergency Department.”

The doctors were shocked at the amount of fluid that I had around my heart. I ended up with a pacemaker in the process,” says Kilian.

Read the entire article at Heart failure symptoms easy to miss for unsuspecting patients – Chicago Tribune.

Starting Cardiac Rehab

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It’s started finally!   Tuesday, March 26, 2013 was DH’s first day in Cardiac Rehab, just over 8 weeks post-op.  This was an “intake appointment”, and much longer than the normal ones will be.

We got to choose when the future class would be – either Monday-Wednesday-Friday at 7:00 am or Monday-Wednesday-Thursday at 1:00pm.  Anyone who knows me knows that I chose the afternoon class.  I just didn’t want to get up that early and have to deal with early morning rush hour each of those days.

Diana, the intake nurse was very nice – in fact, everyone we met was.

First things first – money.  We found out that his insurance would pay for most but that there would be a $15 copay each session.  However, we did get a parking voucher saving us $5 on the parking garage.

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Description unavailable (Photo credit: pennstatenews)

We got a packet of information on all kinds of things, including food guides – what to eat, what not to eat.  Hooray!

I noticed a poster showing the image (right) for choosemyplate.gov.  I looked at that site when it first came out – and I’m looking again!

Diana was the one who set up the class times, as well.

Next was Claire, a nurse.  She checked all the meds and vitamins that DH takes.  She said that saw palmetto interfered with one of  his prescriptions and she suggested we take the list to CVS so that they can look for other interactions.

She did an EKG,  checked pulse in several locations, looked at the  scar, checked blood pressure on both arms (sitting and standing), listened to the carotids.

BP was  136/64 right,   112/60 left,   119/70 standing left.

She made an appointment with the dietician for Wednesday April 17 at  2:30, after a rehab class.

Turns out that there are patient meetings on the second Tuesday of each month.  We’re getting very busy with patient meetings, Mended Hearts and rehab plus doctor appointments!

 

They were out of t-shirts his size so we got one that was very large.  Another one will be forthcoming…sometime.

These shirts are special because they have a pocket for the portable EKG machine over the heart in addition to the obligatory logo on the back.  As luck would have it, DH was wearing a t-shirt with a pocket.

DH was hooked up to the EKG.  I gathered that he’ll do that himself in the future.

Next up – Shelly, an exercise physiologist.  She talked a bit, asked DH how often he got new shoes.  She said that it should be every 6 months.  Who knew?

She said to drink water every 15 minutes while exercising.

DH started off slow – Treadmill 5 minutes; Bike 15 minutes; Walked on indoor track for 4 laps

When he was done, we went to the Healthy Heart Cafe for a bit of lunch.

Wednesday, Day 2

We got there in plenty of time.  DH turned out to be the only person in this class, at least for now.

He did his exercises but was told he needed to eat breakfast in the future – his blood pressure was too low.

It’s becoming a habit – when he was done, we went to the Healthy Heart Cafe for another bit of lunch.

I had bought him a Groupon for a local garden shop as a Christmas gift.  Of course, I had no idea then that he wouldn’t be doing much gardening this year.  In any event, it was going to expire on March 30, so we went there after rehab and got a few things 🙂  They may all become house plants – we’ll see!

Absolute exhaustion by the time we got home.

Monday – Four Weeks Post-Op

This is the first of the timeline posts that I’m actually writing more or less as they happen!

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Last Monday, Feb 18 was the first visit with the cardiologist.  Getting there was a bit of a problem but the appointment itself went smoothly.

We got into the inner sanctum and a very nice nurse named Lisa took down DH’s info.  It worked out well that we hadn’t finished all the paperwork since she had lots of info fron the hospital, anyway.

She took DH’s blood pressure and oxygen levels (both good), then took the bags of meds and vitamins away for cataloging.

The doctor came in and asked some of the same questions as everyone else about how he was eating, sleeping, exercise, swelling, pain.  He listened to DH’s heart and lungs and everything sounded good.  He checked the legs for swelling…none.

We made 2 more appointments – one for a low-stress treadmill next week and one with him for three months out.  There’s also bloodwork to be done before the treadmill. After passing the treadmill test, DH can start rehab.  Yea!

When we got home, there was a call from the PCP’s lab.  DH called back but had just missed them.

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DH slept in the bed and out of the recliner for several hours last night.  Another step forward!

DH finally got through to the PCP’s lab and the cholesterol numbers were excellent.  Hooray!  Other numbers such as liver enzymes were good, too.

day-wed
DH did some work today, with several naps in between. I got the car taken care of. He got the disher unloaded and reloaded – with resting afterwards.

He decided to start off the night sleeping in bed and made it until about 4:00 am. He said that there was no pain but he would be more comfortable in the recliner.
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DH spent most of the morning working (at home) on a proposal, then most of the afternoon napping.  Most of the pain seems gone – hooray! Evening there was a short meeting with a nap before and after.  Then, dinner and another nap before bed.

He started out for about an hour in bed, then back to the recliner for the rest of the night.

He doesn’t seem to cough nearly as much. Hooray!

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Friday through Sunday – lots of napping, trying to sleep or nap in the bed but usually winding up in the recliner.

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It was a nice day so we took the dog outside for a very short walk…followed by more napping.  DH is looking forward to the treadmill test on Wednesday so he can start the rehab soon.

Another Not-So-Stellar Monday

Monday

This Monday, February 18, started off just fine.  The problems started when DH tried to fill out the online forms for the cardiologist.  He tried 4 times.  The form never saved, the continue button didn’t continue, the information was lost each time.

So, we decided to go at 2PM for the 3:30 appointment to allow plenty of time to fill out the forms in the office.

We gathered up a bag of meds, a bag of vitamins, all the medical records and got into the car.  The car wouldn’t start.  The horn, radio and lights worked so it’s probably not the battery.

We called a friend who was unavailable but she called her husband who came and picked us and all our stuff up. We headed out Route 66 and traffic was slow, especially for heading east on a holiday.  There was an accident at the 495 exit so we got off an exit early and went that way.

We got to the appointment at 2:45 – plenty of time.  Except that it turned out that the appointment was in a different office.  DH had made the appointment for the office 10 minutes away from our house and had forgotten.

So…we gathered up all that stuff and called a cab.  The driver got there in about 10 minutes and we got in.  First thing I noticed – the driver had cologne on.  Instant headache for me.

He went a way I wouldn’t have gone, possibly to raise the rate, or not.  We got to the Fair Oaks office – right next to the ER where this adventure started 3 weeks ago – by 3:20PM, early for the appointment.

DH got the forms filled out in record time.

Tomorrow, I deal with my car, after my headache is completely gone.