18 Years Kidney Cancer Free!

WOOHOO

Amazing! It’s Been 18 Years, Already.

Today is the Eighteenth Anniversary of my kidney cancer surgery.  These eighteen years have been bonus years for me.  For my cancer stage, the 5-year survival rate was 81% and I’ve made it more than three times that long – so far.
What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and an aunt had it twice each.  Of course, there’s no guarantee that I won’t get that, too.

And the risk factors for kidney cancer aka renal cell carcinoma? The majority of kidney cancers are renal cell carcinomas. Risk factors for renal cell carcinoma include:

  • Age. Your risk of renal cell carcinoma increases as you age. Renal cell carcinoma occurs most commonly in people 60 and older.

I was younger than this.

  • Sex. Men are more likely to develop renal cell carcinoma than women are.

I am female

  • Smoking. Smokers have a greater risk of renal cell carcinoma than nonsmokers do. The risk increases the longer you smoke and decreases after you quit.

Not me!

  • Obesity. People who are obese have a higher risk of renal cell carcinoma than do people who are considered average weight.

A Cushing’s gift

  • High blood pressure (hypertension). High blood pressure increases your risk of renal cell carcinoma, but it isn’t clear why. Some research in animals has linked high blood pressure medications to an increased risk of kidney cancer, but studies in people have had conflicting results.

Never had this until the kidney cancer.  It went away immediately post-op but it’s back now.work

  • Chemicals in your workplace. Workers who are exposed to certain chemicals on the job may have a higher risk of renal cell carcinoma. People who work with chemicals such as asbestos, cadmium and trichloroethylene may have an increased risk of kidney cancer.

What?  Me work?  

  • Treatment for kidney failure. People who receive long-term dialysis to treat chronic kidney failure have a greater risk of developing kidney cancer. People who have a kidney transplant and receive immunosuppressant drugs also are more likely to develop kidney cancer.

Nope.  Some sites also list polycystic kidney disease.  I don’t have that but half my husband’s family does.  Hmmm – wonder if that’s contagious

  • Von Hippel-Lindau disease. People with this inherited disorder are likely to develop several kinds of tumors, including, in some cases, renal cell carcinoma.

I’ve wondered about this but, you know, it’s too “rare”.

  • Hereditary papillary renal cell carcinoma. Having this inherited condition makes it more likely you’ll develop one or more renal cell carcinomas.

Not that I know of. 

I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma).
April 28, 2006, I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages for several of my doctors on what I should do. I finally decided to see my PCP after I got my husband home.
When Tom was done with his testing, his doctor took one look at me and asked if I wanted an ambulance. I said no, that I thought I could make it to the emergency room ok – Tom couldn’t drive because of the anesthesia they had given him. I barely made it to the ER and left the car with Tom to park. Tom’s doctor followed us to the ER and became my new doctor.
When I was diagnosed in the ER with kidney cancer, Tom’s doctor said that he could do the surgery but that he would recommend someone even more experienced, Dr. Amir Al-Juburi.
Dr. Amir Al-Juburi has been so kind to me, almost like a kindly grandfather might be, and he got rid of all 10 pounds of my kidney and cancer.
I owe him, the original doctor, and my Cushing’s doctors, my life.
The following are extracted from posts that were made during my kidney cancer diagnosis and surgery in 2006:
From Alice April 29, 2006
This is Mary’s friend, Alice (Dearest of Power Surge).
I’m not going to go into every detail at this time. I will fill you in on more details as I receive them from Mary and Tom. I’m sure Mary posted on the boards that she recently went back to Johns Hopkins in Baltimore to be retested because the tests that had been done the past year were incorrect and she was getting the wrong dose of hGh for the past year. In any event, she was tested again on Thursday and then returned home. The above is just a preface to create a time frame of events. It isn’t the reason I’ve come here to ask for prayers for Mary.
This is: Mary mentioned to me last week that she had noticed some blood in her urine. She was going to get it checked. As it were, when she returned from Johns Hopkins, she drove her husband, Tom, to get his regular biopsy for his history of prostate cancer.
While in the emergency room, Mary started having cramps in her stomach and when she went to the rest room, discovered a great deal more blood in her urine. Fortunately, she was at the hospital with her husband when this occurred. The cramps were becoming more severe. The doctors checked her out and they found a tumor in one of her kidneys – the tumor is actually the size of the kidney.
At this point and time, the doctors are recommending removal of the kidney and one of her adrenal glands. One surgeon recommended immediate removal of the kidney. Mary and Tom wanted to first talk with her other doctors and will decide on what surgeon performs the surgery. She never left the hospital where she simply went to take Tom for his test. Instead, she was admitted. She had a great deal of pain last night, but it was helped with pain killers. I will provide hospital details later.
She’s scheduled for an MRI later this morning or early afternoon.
I don’t want to go into much more detail except to say that whatever the condition of the tumor, the prognosis is pretty good.
I know how much all of you love her (as I do), how much she’s done with this site, how hard she’s worked to provide you with so much wonderful information about Cushing’s — plus what a good friend she’s been to so many of you. I also know that those of you who talk to her may want to call her. She needs time to go through all the preliminaries before being inundated with calls.
I will do my best to keep you apprised of Mary’s situation as I receive information. When she gives me the go ahead for giving out the hospital and is ready to take calls, I’ll pass the information along.
Please take a moment to send prayers for {{{{{MaryO}}}}} (she’s “our” MaryO on Power Surge, too) that everything will turn out all right and she will get through this crisis with flying colors.
Dearest
~~~~~~~~~~~~~~~
From Alice April 30, 2006
* Addendum: 9:30 AM – made some corrections to the 5 something AM post.
What a beautiful show of love and support.
I spoke to Mary last night. She had the MRI as scheduled. She spoke with her own doctor and they decided on a surgeon, but it means going to another hospital. She said she’d probably be coming home for a day before going in for the surgery.
I hesitated to mention in my first post that the doctors said they * think the kidney tumor is malignant due to it’s size – 5 cm. I’m sure many of you surmised that, or why would the emergency room doctors recommend immediate surgery. However, as I said earlier, Mary and Tom wanted to consult with her own doctor first. She was told that if, in fact, it is kidney cancer and is detected and treated early and confined to the kidney, the chances for a full recovery are good.
Considering what she’s going through, Mary sounded good. Lord knows, she’s been through so much already. God willing, this may resolve some of the other health issues she’s been experiencing.
Knowing Mary, when she returns home for a day before checking into the other hospital for surgery, if she’s up to it, she’ll post here herself and provide you with additional details.
For now, I’ve told you just about all I know.
Keep up those prayers!
Alice
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From Alice April 30, 2006
11 AM Update:
Mary had a brain scan this morning. She was supposed to have a bone scan today as well, but they’re doing it tomorrow instead, so they told her she could GO HOME TODAY (until she checks into the other hospital for the surgery)! She’s thrilled to be going home and I’m sure she’ll be here posting to all of you herself. You know Mary can’t stay away from computers very long. I’d venture a guess that if they looked inside, her arteries and veins would look more like computer cables (ducking).
We love Mary – so keep on praying that everything goes well, that the tests all yield good results and that she’ll be getting better ‘n better until she’s finished with this whole ordeal
(please, God!)
Reminds me of the phrase . . .
Good, better, best
Never let it rest
Til the good is better
And the better, BEST!
Alice
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From Alice April 30, 2006
Update – 2:15 PM:
Spoke with Mary. She’s home. She’s resting. The brain scan, chest/lung x-ray, abdominal scan all came out clean. The only test remaining that I know of is the bone scan, but it’s excellent that the above tests yielded good results.
She’s going back to the hospital for the bone scan tomorrow and, hopefully, scheduled for surgery ASAP.
Her attitude is very good. She sounds very good and I know, with God watching over her, and everyone showing so much love and caring, she’ll pull through this with flying colors.
It’s easier for me in conveying information to you to do so with an upbeat attitude. I try to avoid thinking of these things as tragedies or things that make me sick. Of course, I’m saddened and sorry that Mary is going through this — and has gone through so much, but such is life. You all certainly know that very well. Nobody hands us a guarantee that life is going to be without problems. And, yes, as the Morton’s salt container says, It never rains, it pours. But my M.O. is to try to keep as positive as possible, especially when in the throes of life’s unanticipated crises.
I believe the expression, “Attitude” is half the battle won.
Mary’s attitude is excellent and I know in my heart she’s going to come through this just fine.
Alice
P.S. An expression I remember my mother using, “The things we fear never happen. It’s the things we never think about that do!”
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From Alice May 2, 2006
There wasn’t much to add yesterday. Mary was scheduled for a bone scan, but first had to have the radioactive tracer substance injection (I presume it was injected — she wasn’t sure herself). She was scheduled to have that around 10:30-11 AM, ET, and then had to return five hours later for the bone scan.
I didn’t speak with her last night, but she text messaged me around 6:30 that she was finally home and that the surgery had been scheduled for a week from today, Tuesday, May 9th at 9:30 AM.
I’ll post the hospital information as the time draws near.
That’s about it for now. She’s still sounding pretty good and wants to get the surgery done already!
Let’s keep those prayers going!
Alice
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From Me May 2, 2006
First off, I’d like to thank you all for your good wishes, support and prayers. I could do the Sally Field thing and say “…and I can’t deny the fact that you like me, right now, you like me!” but I won’t 🙂
I plan to print everything out and take it with me to the hospital as a cheery-upper.
Alice has been such a wonderful friend through all this, calling, checking up on me, keeping all of you updated on things as they are known right now. Her support and love has been such a wonderful blessing in my life, especially now.
As it is, I’m currently feeling “normal” whatever that is. If I didn’t know I had a problem, I would think that I was just fine.
I am fortunate that I found this out before the tumor could grow any larger. I am fortunate that I was close to the ER, not driving home from Baltimore, or in Baltimore, Oklahoma or on the cruise.
I know that the tumor has been growing for quite a while – it’s very large. I saw the MRI images and even I can tell that it’s not normal. As far as I know now, all the other scans have been fine. I had an abdomen CT, chest CT, brain MRI, chest/abdomen MRI and a full body bone scan.
When I was in the ER Friday, they assumed that it was a kidney stone and did the first abdomenal CT scan looking to see where that was. They came back with the news that yes, I had a kidney stone but that it was the least of my worries at them moment. So, I was admitted to the hospital and had all the other scans except the bone scan. Knowing what I know now, it would have been better and easier for me to have had the bone scan as an inpatient. As soon as I checked out and was out of the system, it was harder to get an “emergency” (not scheduled weeks in advance) bone scan. Oh, well.
My surgery will be next Tuesday, May 9, at 9:30AM at Fairfax Hospital (http://www.inova.org/inovapublic.srt/ifh/index.jsp ). I’m expected to stay there for 3-5 days post op and they don’t anticipate any pesky complications like chemo or radiation at this time.
For now, I’m keeping my normal schedule, avoiding reading horror stories online, eating, sleeping – even napping! – as usual. Sometimes I even forget that I have this little medical appointment next week.
For a non-phone person I’ve talked with so many people these last few days, it’s mind-boggling.
I’m happy to report that all is not lost on the (Cushie) cruise. Someone will replace me – and there will be another cruise later in the year. YEA! My main “concern” on that now is that I’ll lose weight (finally!) post-op and my cruisewear will no longer fit. Yeah, right.
In thinking back, I think it’s a good thing that my arginine test was messed up in Sept of 05. If it hadn’t been, I wouldn’t have redone it on Thursday. I believe that having that stuff in my body was what made my kidneys rebel and act up on Friday. So, without the lab screw-up I might not have known anything for a long time.
So, it’s all good
Thanks to everyone who has called and posted such wonderful things. I cannot begin to imagine what my email looks like…
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From Alice May 9, 2006, 09:10 AM
I’ve been in constant contact with Mary. Spoke to her at 7 this morning. She, Tom and their son, Michael, were on the way to the hospital. Mary sounded very good as she has all week. She’s going in with an excellent attitude.
She’s probably being prepped right now. The surgery is set for for 9:30 (ET). They anticipate the surgery will last 3 1/2 – 4 hours.
Now, all we can do is pray and wait. Tom will call me after the surgery is over. As soon as I hear something, I’ll make it a point to come back and post what I know.
Your support, love and prayers have been remarkable. Thank you on behalf of Mary. Please keep on praying until it’s over.
God? You listening? You’ve got someone very special to watch over this morning. We’re counting on you!
Alice
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From Alice May 9, 2006, 12:33 PM
Mary’s husband, Tom, called me at 12:15
He said it’s going to be another 3 hours – around 3:15 PM – before they’re done. Surgery didn’t start as scheduled at 9:30, but more like 11:30. There wasn’t that much he could tell me except that the doctors said, so far everything is going as expected and Tom said, “so far, so good.”
I hesitate to draw any conclusions from that statement because I’m not 100% sure of what the doctors expected, so it’s a matter of waiting until it’s over.
I’ll keep you posted. Keep praying, please!
Alice
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From Alice May 9, 2006, 2:00PM
Tom called at 1:15, but we had a bad connection. We finally connected.
The operation is over. Mary was being sewn up. Tom said according to the doctor, “the tumor and the kidney were removed.” The doctor is calling the operation a “complete success.”
I asked if they saw any signs of cancer anywhere else because Mary had told me originally that they’d said they might remove the gallbladder, too, but they didn’t remove the gallbladder – which is a good sign.
It appears as though everything was concentrated in the kidney.
Thank God. It’s over!
Alice
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From Alice May 9 2006, 07:39 PM
Someone said: “… I told her that I would wait until she was home and feeling much better before I talked to her again and she agreed that she wasn’t sure she would be up to taking phone calls. Again, thank you so much for keeping us updated… this way we can know how Mary is doing without her having to take so many calls…”
That’s exactly how Tom and I feel. Tom suggests people not call the hospital. I wouldn’t even call his cell phone all day. I waited for him to contact me. I know he’s also exhausted. I figured he’d call when he was up to it. He called about 15 minutes ago.
It’s important that Mary get all the rest she can while recovering. Yes, everything turned out well, but she still had major surgery, is on morphine and needs her sleep. It’s important that we all allow her this time to rest.
It just so happened she was awake when he called and he turned on his cell phone’s speakerphone so Mary and I could talk for a minute. I was so happy to hear her voice. She sounded tired, her mouth was dry, but she sounded good.
Because this is a public message board, I prefer not to post details of the room she’s in. If anyone wants this information for the purpose of sending something to Mary, please E.mail me from the address you registered with on the board, and please include your user name. Thanks.
Another thing is that Mary has allergies, so for those wishing to send something to her, Tom and I (and Mary, as we discussed before she went into the hospital) agree she’s better off without flowers.
Finally, Tom said the doctor was very pleased with how her surgery went – that her body was quite robust, that there was very little bleeding, so no transfusion was needed, and he was generally very pleased with the surgery.
It’s been a very stressful day. I love Mary like a sister. We’ve been good friends for 11 years. I cried so after he initially called and said everything went well. I know all of you love and care about Mary, too.
All I’ve thought all day is, thank you, God, for watching over MaryO. I know all of you have thought the same thing.
That’s about it for now — she even cracked a personal joke when we said goodbye — she’ll be back to her old self again before too long.
Alice
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From Alice May 13 2006, 08:10 PM
Saturday Update on Mary:
When she’s back on her computer, I know Mary will be thrilled to read all your thoughtful, beautiful and caring messages.
She’s doing well. The worst part is the incision which is quite large because the doctors originally anticipated the possibility of having to remove the adrenal gland above the kidney that was removed and the gall bladder as well. However, as I posted earlier, once they got in there, everything was found to be clean so they just took out the tumor and the kidney (as if that’s not enough). So, when she gets up to go to the bathroom, the incision is quite painful. I imagine an incision of that size will take a while to heal. Other than that she says she feels good!!
Additionally, the doctor was awaiting the results of the lymph node biopsy (just to be sure) and he told her yesterday, “everything looks clean.”
She was originally scheduled to go home tomorrow, Sunday, but . . . she went home TODAY!
Spoke to her after she arrived home (sorry I didn’t post earlier, but also have my Web site to deal with).
She sounded great and was glad to be home especially since a new person checked into her room yesterday and Mary wasn’t able to sleep all night.
That’s all for now – and all very good news, thank God!
Alice
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From Me: June 17, 2006 post-op:
Thank you all for your prayers, good wishes, cards, phone calls, gifts, general “cheery-uppers”. They all really helped me on my road to recovery.
I do have a ton of thank you cards to send out to lots of people – I’m very slow at that. Under normal circumstances my handwriting is terrible. Now, post-op kidney cancer, I can no longer take my arthritis meds or any NSAIDs and my writing will probably be even worse 😦
I am very nearly better, not much pain anymore, a nasty big scar and my energy levels aren’t so great. Of course, they were awful before. I can no longer take the GH even though I’m deficient. In 5 years (if I survive!) I can take the GH again, supposedly.
I’ve had a lot of time to do a lot of thinking over the last 6 weeks. I know I was extraordinarily lucky to have my tumor discovered before it was too late. The lab reports and my surgeon reported that it would only have been a week or so before the tumor had hemorrhaged and caused major problems. Thank goodness the argenine retest for GH had caused me to bleed – at least I think that’s what set it off. If I hadn’t had all the blood and pain for one day only, I’d have had no clue that I had this cancer and who knows what would have happened in that next week.
I will be getting CT scans every 3 months for awhile to be sure that there is no cancer hiding out.
During my time of thinking, I have also been thinking about making changes to the boards based on what I have heard was going on here. I am not yet sure how these changes will manifest themselves but I do know that bashing others will not be tolerated. More on this later, in another area.
Again, thank you for all your support!
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From Me July 6, 2006
Since I recently had surgery for kidney cancer, I’ve been looking around for another board to read and talk about this with other survivors (hopefully!) I haven’t found anyplace I’d like to visit or feel comfortable with yet, so I decided to make a new area here.
I know – or I think I know – that no one else here has had kidney cancer, although I know at least 1 other person has had a kidney removed and several others have reported kidney stones and other possible kidney diseases.
I’m sure that my recovery will be much the same as for any other major abdominal surgery, although I’d like it to be faster.
Before my surgery, I didn’t have time really to consider that I had cancer, and what it meant for my life. There was no going from doctor to doctor, running a different test each week, suspecting that maybe… Just boom, there it is. Cancer.
Now that I’m about 8 weeks post-op, I’m thinking more and more about this and how it might affect my future. I know that there are going to be lots of scans, every 3 months, just to be sure that there wasn’t a cell hiding out.
I know I have to be careful with meds – no NSAIDs so my arthritis is worse. No GH – it’s contraindicated for 5 years…assuming I’m cancer free then.
I’m supposed to be eating less protein, more fruits/veggies, drinking more water.
And I’m supposed to avoid playing football and other things that might damage my remaining kidney.
Normally, I know how very lucky I am. I just reread the path reports and know that the tumor was already hemorrhaging around the borders and the cysts contained hemorrhagic fluid. Things could be much worse.
Sometimes, at night when I can’t sleep, I wonder why I was lucky like this. What haven’t I done with my life that I should. Seems to me that I’ve accomplished what I should already.
And, in the night, I worry about the cancer returning, taking my other kidney or worse.
At this time, there’s no standard chemo unless it’s metastasized, although there are some promising clinical trials and radiation doesn’t seem to work for this kind of cancer, so if it returns it’s more surgery.
I suppose I could/should have put all this in my blog, but I put it out here in case anyone else should need this in the future. I hope not!
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From me Aug 19 2006, 01:25 AM
Thanks so much for asking!
Unfortunately, I haven’t read the boards much lately – I’m spending most of my online time deleting/banning the InstaChat intruders.
I have been working on the websites, though, and that’s always fun! I’ve even added a new one to the roster and it has some cool stuff on it. New features to be announced in the upcoming newsletter.
I’ve been even more tired than usual now that I’m off GH. I can’t take my arthritis meds, or anything like Excedrin (no NSAIDs) so my joints are nearly always bothering me and I have to wait out any headaches. I’m also just getting over a UTI.
I just had my 3 month post-op CT scans and I hope they come out ok. At first I was grateful that I wouldn’t have to have chemo or radiation come to find out that neither has been discovered yet which works well with kidney cancer. Apparently, it can resurface any time for the rest of my life. I’m hoping that some of the chemo clinical trials show some good results so I can get this thing before it metastasizes somewhere.
I’m having trouble sleeping (1:20 AM here, now) although I’m always tired. My mind plays all kinds of tricks in the night. Those InstaChat people don’t help, either! When I wake up just a little, instead of falling back asleep, I’ll go check to see what they’ve done.
Whine, whine!
On the plus side – I survived the kidney cancer surgery, and it’s almost vacation time!
Even vacation will be bittersweet, though. 2 years ago, Sue went with us on vacation. She had a great time and she had asked if she could go with us again this year. Of course, we had said yes…
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From me May 8 2008, 11:07 PM
I am feeling very maudlin, a bit down and depressed. It’s very nearly the anniversary of my kidney cancer surgery. I posted this in my blog a few days ago:

I’ve been feeling weird for about a week now. Last Friday, I went through the whole “Sending Prayers” topic (MKO’Note: this thread) that my good friend Alice started for me.After I read that, I started reliving all the kidney cancer events…again. I know I shouldn’t do this. My counselor says that this is a very stressful thing to do and it’s not good for me, for anyone. But I do it anyway, especially the pituitary and cancer surgery anniversaries. I wish I did this with good stuff, could relive that instead of the scary and painful.
After I finished rereading all that, I went back to my post in the cancer section: I guess I’ve talked about this more than I think! I just wish there was someone I could get answers and support from. I have never met anyone in real life who has shared my particular brand of cancer, haven’t talked to anyone on the phone or emailed anyone.
I even asked at my local cancer support center about support for me – they have all kinds of meetings, mainly for breast and prostate cancer, but other kinds, too. But they said that there weren’t enough kidney cancer people to have a meeting. The one and only book that the library there has on kidney cancer was given to me by the author to donate there.
Lucky me – two rare diseases that no one gets. According to statistics I should be a black man who smokes and works in the iron and steel industry or is exposed to certain chemical and substances, such as asbestos (a mineral fiber that can be used in construction materials for insulation and as fire-retardant) and cadmium (a rare, soft, bluish-white chemical element used in batteries and plastic industry), also increase the risk for renal cell carcinoma. I should have polycystic kidneys and not drink the copious coffee.
So…where did it come from? A mutation of my parents’ and aunt’s colon cancer or do I still have that looming on my horizon?
And the Cushing’s came from nowhere, too. I know that no one knows these answers but I think of them a lot, especially at night.
Although I’m not afraid of death and would like it to be as peaceful and pain-free as possible, I still dream at night that I’m dying or have died. These dreams have been going on since before the cancer and I can’t seem to shake them although I’m taking them more in stride now and can go right back to sleep.
And from last year’s post on this topic, these still concern me:
What if the lung nodules that “aren’t growing” turn out to be something on the next scan? Is the stomach distress I’m currently feeling a cause to ask for my next colonoscopy a bit earlier?
Is the pain on the other side the other kidney causing trouble? Or something new with an ovary?
What if, what if…?
Seems like in my addled brain any new symptom could be cancer, not the simple stomach bug or pulled muscle.
Had they told me in 2006 that I only had a year or two to live, I’d have thought it far too short a time. I guess how long a year is depends on the frame of mind!
I hate going for scans because they could show something but I get nervous when there are no scans because there could be something else! Seems like my mind is setting me up for a lose-lose situation.
I’m sure as I get closer to Friday that other thoughts will come to me. I am so grateful that I’ve had these two “bonus years”. I feel like there is so much still to do with the Cushing’s sites and I will never get them done in my lifetime but I plan to keep trucking along!

And from Wonderful Words of Life…
I’m acquiring the title of an old hymn for this next post.
After I was finished with the long Cushing’s diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who did the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
i thought I had written down the verse carefully. I practiced and practiced, I don’t like speaking in front of a crowd but I said I would. When I got to church, the verse was different. Maybe I wrote it down wrong, maybe someone changed it. Whatever.
This verse has come to have so much meaning in my life. When I saw at a book called A Musician’s Book of Psalms each day had a different psalm. On my birthday, there was “my” psalm so I had to buy this book!
Psalm 116 (New International Version)
1 I love the LORD, for he heard my voice;
he heard my cry for mercy.
2 Because he turned his ear to me,
I will call on him as long as I live.
3 The cords of death entangled me,
the anguish of the grave came upon me;
I was overcome by trouble and sorrow.
4 Then I called on the name of the LORD:
“O LORD, save me!”
5 The LORD is gracious and righteous;
our God is full of compassion.
6 The LORD protects the simplehearted;
when I was in great need, he saved me.
7 Be at rest once more, O my soul,
for the LORD has been good to you.
8 For you, O LORD, have delivered my soul from death,
my eyes from tears,
my feet from stumbling,
9 that I may walk before the LORD
in the land of the living.
10 I believed; therefore I said,
“I am greatly afflicted.”
11 And in my dismay I said,
“All men are liars.”
12 How can I repay the LORD
for all his goodness to me?
13 I will lift up the cup of salvation
and call on the name of the LORD.
14 I will fulfill my vows to the LORD
in the presence of all his people.
15 Precious in the sight of the LORD
is the death of his saints.
16 O LORD, truly I am your servant;
I am your servant, the son of your maidservant;
you have freed me from my chains.
17 I will sacrifice a thank offering to you
and call on the name of the LORD.
18 I will fulfill my vows to the LORD
in the presence of all his people,
19 in the courts of the house of the LORD—
in your midst, O Jerusalem.
Praise the LORD.

I carry a print out of this everywhere I go because I find it very soothing. “when I was in great need, he saved me.” This print out is in a plastic page saver. On the other side there is an article I found after my kidney cancer. I first read this in Chicken Soup for the Surviving Soul and is posted several places online.

The Best Day Of My Life
by Gregory M Lousignont
Today, when I awoke, I suddenly realized that this is the best day of my life, ever! There were times when I wondered if I would make it to today; but I did! And because I did I’m going to celebrate!
Today, I’m going to celebrate what an unbelievable life I have had so far: the accomplishments, the many blessings, and, yes, even the hardships because they have served to make me stronger.
I will go through this day with my head held high, and a happy heart. I will marvel at God’s seemingly simple gifts: the morning dew, the sun, the clouds, the trees, the flowers, the birds. Today, none of these miraculous creations will escape my notice.
Today, I will share my excitement for life with other people. I’ll make someone smile. I’ll go out of my way to perform an unexpected act of kindness for someone I don’t even know.
Today, I’ll give a sincere compliment to someone who seems down. I’ll tell a child how special he is, and I’ll tell someone I love just how deeply I care for her and how much she means to me.
Today is the day I quit worrying about what I don’t have and start being grateful for all the wonderful things God has already given me.
I’ll remember that to worry is just a waste of time because my faith in God and his Divine Plan ensures everything will be just fine.
And tonight, before I go to bed, I’ll go outside and raise my eyes to the heavens. I will stand in awe at the beauty of the stars and the moon, and I will praise God for these magnificent treasures.
As the day ends and I lay my head down on my pillow, I will thank the Almighty for the best day of my life. And I will sleep the sleep of a contented child, excited with expectation because know tomorrow is going to be the best day of my life, ever!

When I’m feeling down, depressed or low, reading my 2 special pages can help me more than anything else.

National Clean Out Your Medicine Cabinet Day

This is a holiday I can really get behind!

Gear up for National Clean Out Your Medicine Cabinet Day! Happening every third Friday in April, this crucial day is all about purging your home of unused or expired medications that could pose serious risks.

Why should you care? Leftover medications can tempt family members, friends, or visitors, potentially leading to misuse or abuse. Plus, improper disposal can wreak havoc on our environment, contaminating the water we drink and the soil that nourishes our food.

How to Make a Difference:

1. **Survey and Sort:** Dive into every nook where medications might hide — from medicine cabinets to kitchen drawers. Don’t forget to check your pet’s meds too!

2. **Eco-Friendly Disposal:** Say no to flushing meds! Opt for at-home drug disposal solutions like DisposeRx to keep our waters clean.

3. **DEA National Drug Takeback Day:** Got a stash to clear out? Join in on DEA’s Takeback Day, held twice a year for those larger hauls.

Share Your Success: After you’ve cleared out your meds, snap a photo and share it on social using the hashtag #CleanOutMedsDay. Let’s spread the word and encourage others to join the movement!

DisposeRx initiated National Clean Out Your Medicine Cabinet Day in 2019 to spotlight the dangers of hoarding old meds. With risks ranging from drug addiction to accidental poisoning, it’s more important than ever to keep our homes safe and our environments clean.

Mark your calendars! This day is officially recognized on the third Friday in April each year. And remember, when it comes to medicine, storage matters. Keep your meds in cool, dry, dark places to preserve their potency.

Did you know? Medications can lose or even increase their potency over time, depending on how they’re stored. Make sure your meds are safe and effective by keeping them in optimal conditions.

Join in making homes safer and the planet healthier on National Clean Out Your Medicine Cabinet Day!

 

It’s Kidney Cancer Awareness Month Again

Kidney Cancer Awareness is very important to me, because I learned I had it in 2006.

I’m pretty sure I had it before 2006 but in that year I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages for several of my doctors on what I should do. I finally decided to see my PCP after I got my husband home.

When Tom was done with his testing, his doctor took one look at me and asked if I wanted an ambulance. I said no, that I thought I could make it to the emergency room ok – Tom couldn’t drive because of the anesthetic they had given him. I barely made it to the ER and left the car with Tom to park. Tom’s doctor followed us to the ER and became my new doctor.

When I was diagnosed in the ER with kidney cancer, Tom’s doctor said that he could do the surgery but that he would recommend someone even more experienced, Dr. Amir Al-Juburi.

Dr. Amir Al-Juburi has been so kind to me, almost like a kindly grandfather might be, and he got rid of all 10 pounds of my cancer in addition to my kidney.

More than 12,000 people in the UK are diagnosed with kidney cancer each year, according to 2014 statistics.

And although 42% of cases are deemed “preventable”, only 50% of patients survive kidney disease for 10 or more years.  I will celebrate 18 years next month, on May 9!

It’s the seventh most common cancer in the UK and is much more prevalent in males.

But do you know the warning signs of the potentially deadly disease?

The 12 main symptoms of kidney cancer:

1. Blood in your pee  Not until the day I was diagnosed.

You may notice your pee is darker than normal or reddish in color. This could also be a sign of chronic kidney disease and bladder cancer.

2. A persistent pain in your lower back or side, just below your ribs No

3. A lump or swelling in your side (although kidney cancer is often too small to feel) No

4. Extreme tiredness (fatigue) Possibly, although I assumed it was from Cushing’s

5. Loss of appetite and weight loss No

6. Persistent high blood pressure Yes

7. A high temperature of 38C (100.4F) or above No

8. Night sweats No

9. In men, swelling of the veins in the testicles Nope

10. Swollen glands in your neck No

11. Bone pain No

12. Coughing up blood No

If you are concerned about any of these symptoms you should see you GP, they will carry out a series of tests, including urine and blood tests, in order to get an accurate diagnosis.

What are the treatment options?

The treatment will depend on the size and severity of the cancer and whether it has spread to other parts of the body.

These are the five main treatments:

1. Surgery to remove part or all of the affected kidney Yes, all plus some other stuff

This the main treatment for most people

2. Ablation therapies No

Where the cancerous cells are destroyed by freezing or heating them

3. Biological therapies No

Medications that help stop the cancer growing or spreading

4. Embolisation No

A procedure to cut off the blood supply to the cancer

5. Radiotherapy No

Where high-energy radiation is used to target cancer cells and relieve symptoms

For more information go to nhs.uk/Conditions/Cancer-of-the-kidney

The 12 symptoms adapted from http://www.dailystar.co.uk/health/605586/Kidney-cancer-symptoms-treatment-males-females-early-warning-signs

National Dress in Blue Day

Blue Dress Day

Anyone who knows me has possibly noticed that I wear blue almost every day.  I think probably 95% or more of my clothes are blue.  My car is blue, several rooms in my house are blue.

Apparently, this national holiday was started to raise awareness about the causes of colon cancer and how to prevent it. I always figured I’d get colon cancer, not the kidney cancer I did get.  My mom, dad and an aunt all had colon cancer – twice each.  Only my mom survived.  She was also the only survivor of a drug trial.  My mom turned 100 in October – what a fighter!

In the heart of a survivor, amidst the echoes of loss and the courage of enduring, Anita Mitchell, a valiant stage IV colon cancer warrior, conceived the transformative idea of National Dress in Blue Day. Haunted by the shadows of her father and a dear friend succumbing to the same stealthy foe, Mitchell was galvanized by a piercing insight: these losses, so profound and personal, could have been averted. With a resolve as unyielding as her spirit, she set out to forge a beacon of awareness in the murky waters of colon cancer ignorance.

In 2006, with a blend of maternal instinct and missionary zeal, Mitchell orchestrated a day of solidarity at her children’s school. It was a day where the innocence of childhood donned the mantle of awareness, with students cloaked in hues of blue, each contributing a dollar to the cause—a symbolic act that wove together the threads of community, empathy, and action.

This spark of inspiration, nurtured by Mitchell’s unwavering dedication, caught the attention of the Colon Cancer Alliance. By 2009, under their stewardship, Dress in Blue Day blossomed into a nationwide clarion call, not just to raise awareness but to honor the resilience and battles of those touched by the disease. The Alliance championed a proactive stance against colon cancer, advocating for regular screenings as a lighthouse guiding individuals away from the treacherous cliffs of advanced diagnosis. Screening, they emphasized, was not just a procedure but a lifeline, capable of reducing the specter of colon cancer deaths by an astonishing 60%.

Armed with knowledge and the power of prevention, the campaign illuminated the truth that most colorectal cancers are not invincible foes but adversaries that can be outmaneuvered. Simple lifestyle shifts—a tweak in diet, a commitment to physical vigor—emerged as silent guardians against the onset of colon cancer. National Dress in Blue Day, thus, stands as more than a day of remembrance; it is a movement of empowerment, a testament to the belief that awareness can kindle the flames of change, transforming the narrative from one of loss to one of hope and proactive living.

Bee’s Knees: TKR, Finally!

After going through the Medical Clearances again, 5 days of antiseptic showers (plus another one this morning), drinking what seems like gallons of Gatorade (I couldn’t have the hospital-offered strawberry Ensure), my surgery is scheduled for 12:30 pm today. There will be a Covid test at 10:30.

We have been watching tons of youtube videos on knee replacement, physical therapy I think that this was one of the most helpful:

From the hospital…

As your surgery date gets closer, you might feel uneasy. But the more you know about what to expect, the less nervous you’ll be. Take a few minutes to learn how the day will unfold.

What happens when I get to the hospital?

You’ll usually be asked to arrive about 2 hours before your operation starts. A registered nurse will greet you and help you prep. You’ll discuss with them your medical history and the medicines you take. You’ll also get a chance to talk to people on your surgical team about the operation.

Before you go to the operating room, you’ll first change into a gown. The nurse will remind you to remove things like your jewelry, glasses or contact lenses, hearing aids, or a wig if you have them.

A nurse checks your heart rate, temperature, blood pressure, and pulse. The surgeon may mark the spot on your body where the procedure will be done. A nurse places an IV line in your arm so the doctor can give you fluid and medicine during your operation.

When it’s time for your surgery, you’re wheeled into the operating room on a stretcher.

Who will be on my surgical team?

A group of doctors and nurses work together to make sure everything goes smoothly. The specific people depend on the type of procedure you’re going to have. But in general, your team will have these pros:

Surgeon. This doctor leads the team and does the operation.

Surgeons have to complete 4 years of medical school, plus at least 5 years of special training. They also have to pass a national surgical board exam. The one you choose should be experienced in the type of procedure you’re having.

Anesthesiologist. This health care professional gives you medicine that makes you pain-free during surgery.

Certified registered nurse anesthetist. They assist your anesthesiologist and monitor you before, during, and after your operation to make sure you get the right amount of pain medicine.

Surgical tech. They set up the tools your surgeon will use and make sure they’re sterile.

Operating room nurse. They help the surgeon during your procedure. For instance, they may pass instruments and supplies during the operation.

Will I be in any pain during the operation?

You’ll get medicine, called anesthesia, so that you won’t feel anything during surgery. The type you get depends on your health and the procedure you’re having.

Local anesthesia. It blocks pain in the part of your body where you have surgery. You’ll still be awake and alert.

Regional anesthesia. Youre injected with medicine that numbs the whole area of your body where the surgery takes place.

General anesthesia. It puts you to sleep during your operation. You get this type of medicine through an IV in your vein or by breathing into a mask.

What will happen during my surgery?

Once you’re in the operating room, you breathe oxygen through a mask. Your anesthesiologist gives you medicine to prevent pain.

Your surgical team will track your health during the whole procedure. They’ll probably use:

  • A clip on your finger to measure your oxygen levels
  • A cuff on your arm to check blood pressure
  • Pads on your chest to keep tabs on your heart rate

How will my surgical team keep me from getting an infection?

Before the surgery starts, a nurse cleans your skin with an antiseptic to help prevent infections. They may remove hair from the area and place a sterile drape over your body. It will have an opening in the place where the surgeon will work.

It’s rare to get an infection during surgery. Your team does everything it can to protect you. Your doctors and nurses will:

  • Clean their hands and arms up to their elbows with a germ-killing cleaner before the operation.
  • Wear masks, gowns, and gloves.
  • Clean the part of your body where the surgery is being done with a germ-killing soap.
  • Clean and cover the cut afterward.

They may also give you antibiotics before your procedure to help prevent an infection.

Where will I go after my surgery?

You’ll wake up in a recovery room. A nurse checks your heart rate, breathing, and the bandaged area where your procedure was done. They might also ask you to take deep breaths and cough to clear your lungs.

You’ll stay in the recovery room until you’re fully awake and all your medical signs, like blood pressure and heart rate, are stable. How much time you spend there depends on what kind of surgery you had.

After that, depending on the type of operation you had, you’ll get sent to a hospital room or back home. Either way, you’ll be ready to be greeted by your loved ones and begin the road to recovery.

This post is officially done…for now. Next stop, Total Knee Replacement.

Bee’s Knees: Pre-TKR, Another Setback?

On 1/23/2023 I said: “Someone pointed out that, since the new surgery is more than 30 days away, I may have to do all the clearances again…”

Thursday, February 15, my heart sank when I got a call from the hospital. After being on hold forever, I talked to a person who wanted to schedule my medical clearance, again. I told her I’d done it before in February for the rescheduled surgery. She said she’d check with my surgeon to see what he wanted.

Friday, I heard nothing until 4:58 pm. He wants to do a medical clearance “revision” whatever that means. So I go back to the hospital next Thursday (March 2) for more testing. If they find some other obscure infection, that won’t be enough time to fix it before the current surgery date Thursday May 9.

March 2, 2023

So, I had the Medical Clearance Revision today and it was exactly like the Medical Clearance I did just over 30 days ago. It looks like surgery is a go. Thursday, March 9 at 12:15.

There’s extra stuff for me to do to prepare, thanks to Cushing’s, the GH deficiency, the Adrenal Insufficiency, the one kidney, etc but I can do it!

1678382100

  days

  hours  minutes  seconds

until

(K)new Knee

.

It’s Kidney Cancer Awareness Month Again

Kidney Cancer Awareness is very important to me, because I learned I had it in 2006.

I’m pretty sure I had it before 2006 but in that year I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages for several of my doctors on what I should do. I finally decided to see my PCP after I got my husband home.

When Tom was done with his testing, his doctor took one look at me and asked if I wanted an ambulance. I said no, that I thought I could make it to the emergency room ok – Tom couldn’t drive because of the anesthetic they had given him. I barely made it to the ER and left the car with Tom to park. Tom’s doctor followed us to the ER and became my new doctor.

When I was diagnosed in the ER with kidney cancer, Tom’s doctor said that he could do the surgery but that he would recommend someone even more experienced, Dr. Amir Al-Juburi.

Dr. Amir Al-Juburi has been so kind to me, almost like a kindly grandfather might be, and he got rid of all 10 pounds of my cancer in addition to my kidney.

More than 12,000 people in the UK are diagnosed with kidney cancer each year, according to 2014 statistics.

And although 42% of cases are deemed “preventable”, only 50% of patients survive kidney disease for 10 or more years.  I will celebrate 14 years next month, on May 9!

It’s the seventh most common cancer in the UK and is much more prevalent in males.

But do you know the warning signs of the potentially deadly disease?

The 12 main symptoms of kidney cancer:

1. Blood in your pee  Not until the day I was diagnosed.

You may notice your pee is darker than normal or reddish in color. This could also be a sign of chronic kidney disease and bladder cancer.

2. A persistent pain in your lower back or side, just below your ribs No

3. A lump or swelling in your side (although kidney cancer is often too small to feel) No

4. Extreme tiredness (fatigue) Possibly, although I assumed it was from Cushing’s

5. Loss of appetite and weight loss No

6. Persistent high blood pressure Yes

7. A high temperature of 38C (100.4F) or above No

8. Night sweats No

9. In men, swelling of the veins in the testicles Nope

10. Swollen glands in your neck No

11. Bone pain No

12. Coughing up blood No

If you are concerned about any of these symptoms you should see you GP, they will carry out a series of tests, including urine and blood tests, in order to get an accurate diagnosis.

What are the treatment options?

The treatment will depend on the size and severity of the cancer and whether it has spread to other parts of the body.

These are the five main treatments:

1. Surgery to remove part or all of the affected kidney Yes, all plus some other stuff

This the main treatment for most people

2. Ablation therapies No

Where the cancerous cells are destroyed by freezing or heating them

3. Biological therapies No

Medications that help stop the cancer growing or spreading

4. Embolisation No

A procedure to cut off the blood supply to the cancer

5. Radiotherapy No

Where high-energy radiation is used to target cancer cells and relieve symptoms

For more information go to nhs.uk/Conditions/Cancer-of-the-kidney

The 12 symptoms adapted from http://www.dailystar.co.uk/health/605586/Kidney-cancer-symptoms-treatment-males-females-early-warning-signs

Bee’s Knees: Pre-TKR, Setback

From the last post…1/24/2022

This post is officially done…for now. Next stop, Total Knee Replacement.

On 1/23/2023 I said:

“New, Approved-Dentist finished up everything he needed so I got Dental Clearance. This is the final piece of the clearance puzzles”

At the end of that appointment, Approved-Dentist gave me a prescription for an antibiotic, just in case.

Stupid me. I asked the intake nurse about that. She reported it to the surgeon who moved my surgery from 2/2/2023 to 3/9/2023. If someone else is rescheduled, I might be able to move mine back. Maybe.

Then, other test results came back – staph infection in my nose, maybe UTI.

Wednesday, 1/25/2023

So, I am still limping around, changing all the physical therapy appointments I’d set up for the 2/2 surgery. One of the positives is that I get more time in water aerobics building up my leg muscles.

A very positive:

1/27/23 was our 50-year anniversary. Amazing! We celebrated early with a cruise on the Wonder of the Seas. I’m still assembling those photos/posts but we went a little earlier in the month because it was cheaper 🙂 I chose this cruise because I thought it would be cool to be on the current world’s largest cruise ship. I have been on larger ships but DH has not.

We have another cruise scheduled for the Arctic Circle in July but I may not make it because of the new surgery date and recovery. I am very excited about that cruise because we tried to do something very similar and Covid changed those plans.

Someone pointed out that, since the new surgery is more than 30 days away, I may have to do all the clearances again.

Today, 1/28/23 is the 10th anniversary of the fall that started all this. My first post about my knee was really about Tom’s heart attack, and the reason for this blog in the first place. Who know that the knee thing would eclipse everything?

In that post I said:

Ice

Monday morning (for real!), I checked the weather and found that school was starting late because of icy conditions.  I put on boots and took the dog out.  It seemed to be raining – if it’s raining, it must be warm, right?  So I didn’t really pay attention (and I had other things on my mind!) and completely missed seeing the black ice.  Next thing I knew, I had fallen on one knee, my cellphone in my pocket bruised my other thigh and my left arm hurt where I’d reached out to catch myself.  Luckily, I hadn’t let go of the dog’s leash.

I ended up sitting in a puddle of icy water for a long time, figuring out how to get up.  I finally sort of crawled up the trash can that was sitting in the driveway.

The dog had an abbreviated walk, I changed my wet, cold clothes and headed to the hospital.  I was showing DH my knee and one of the staff bandaged it up for me.  I told him I hadn’t fallen at the hospital and wouldn’t sue but I guess he wanted to be sure.

(Today, Monday February 18 2013, my knee still has a huge lump under the skin and hurts when I touch it, although I’m no longer limping,  The bruise/pain from cellphone finally went away)

The very first of the Bee’s Knees series was February 28, 2016. I had no idea it would go on so very long. Like I said in the last post, I sure hope this is trus!

This post is (hopefully!) officially done…for now. Next stop, Total Knee Replacement.

Bee’s Knees: Pre-TKR, Part 2

From the last post…12/4/2022 And, there was good news and some surprising news. I got to the doctors office and right away they took x-rays. The results were “Evidence of end stage bilateral knee OA, L>R. Evidence of complete joint
space narrowing. Evidence of osteophyte formation. Evidence of cyst formation

I had no idea that my right knee was as bad. I guess I’ve been so focused on my left that it never occurred to me that I might have other issues.

The term “end stage” was a bit freaky. That sounds to me like I should be bedridden or something.

~~~

1/18/2023

Reject-Dentist still hasn’t sent the receipt, a treatment plan or called to discuss it yet. They did send me an email today asking me to set up an appointment.

Also on 1/18, I went to Reston Hospital for pre-op clearance. This was the third appointment this week, all because of my knee.

1/23/2023

New, Approved-Dentist finished up everything he needed so I got Dental Clearance. This is the final piece of the clearance puzzles

When I got home yesterday I had a new insurance card in the mail. I read all the information and it said I had dental insurance. Reject-Dentist had said that I didn’t so I assumed that I didn’t. Now I get to collect my papers from Approved-Dentist and submit those.

I was supposed to attend a class on knee replacement but the next one isn’t until next month so I got to watch a video instead. I also found this one very helpful:

This post is officially done…for now. Next stop, Total Knee Replacement.

Bee’s Knees: Pre-TKR

From the last post…12/4/2022 And, there was good news and some surprising news. I got to the doctors office and right away they took x-rays. The results were “Evidence of end stage bilateral knee OA, L>R. Evidence of complete joint
space narrowing. Evidence of osteophyte formation. Evidence of cyst formation

I had no idea that my right knee was as bad. I guess I’ve been so focused on my left that it never occurred to me that I might have other issues.

The term “end stage” was a bit freaky. That sounds to me like I should be bedridden or something.

~~~

12/17/2022

So, I’ve scheduled the surgery but i don’t have a specific time yet – I do have a date and a date for follow up and dates for physical therapy.

My dental clearance didn’t go well yesterday.

The new dentist never got my multi-page form and asked me for it in several emails and texts.  I had filled it out as soon as I made the appointment and emailed a copy which they never got. Fortunately, I printed it out.

The parking situation was bad, I hadn’t considered that it was a mall-type place and just before Christmas. After circling the buildings a few times, I had to park in a parking garage and walk. Remember, I’m doing this because of knee surgery.

I got to the building and…I was stuck in the elevator. I tried pushing any and all buttons but I never moved. Finally, I called the office and told them I was in the elevator and they sent someone out who pushed the button on the second floor and I started moving up.

The receptionist didn’t know who I was or why I was there but I had that 8-page printout of their form. I was surprised to see a bowl of candy canes on the main desk – really?

I finally went back and was (very slightly) calmed by the fact that the background music was Mannheim Steamroller.

I told the dental assistant what she would have known had they seen/read my form: I have been terrified of dentists since I was thrown out of one when I was a child (I’ll share more about this later), I have a very small mouth and a bad gag reflex.

She did the preliminary xrays and finally, the real dentist came in. She never looked at me but told my back that she wouldn’t approve me for surgery because there was a “lot of work she wanted to do first.”

I escaped to the front desk and the printer was broken. No receipt for my payment and no copy of a treatment plan. The person assured me that she would email them to me.

I was very leery of that elevator, so I took the stairs and walked back to my car.

Friday and Saturday and neither the treatment plan or the receipt for payment ever arrived.

I tried to log into their system to see if I could get the info that way and I’m not listed as a patient. It did ask me to fill out the forms…again.

Along about now, I decided that this wasn’t the dental practice for me so I found a new dentist, located way closer, on the first floor, in my old bank. I see him Monday. For a person terrified of the dentist seeing 2 in 2.5 days is amazing. I must really want to get my knee fixed!

On Saturday night, reject-dentist asked for a review. I’m waiting for new-dentist to be sure I’m not going back before I fill it out but I don’t think they’ll want to see what I have to say!

When getting dressed on Sunday morning, I found a small cut on my lip, possibly from Friday’s visit and then a filling fell out. Hmmm. Was she creating some of the work she wanted to do?

Monday, new dentist. I got to the new, closer dentist and they also had candy out in the waiting room. Also, they didn’t get my new patient forms and this is starting to look like a rerun.

They took me back and the receptionist was very kind and gentle and she listened to my bad dentist stories from long ago and last Friday.

More x-rays, the dentist came in and he talked to me, too. After the review and in-mouth checkup, he also wants to do a lot of work BUT he is working around my upcoming cruise and he thinks he can get this done so I can keep my surgery schedule. What a change from reject-dentist.

Unfortunately, that means I get a root canal and crown later today. But still. More after he actually does some work!

My TKR (total knee replacement) surgery is scheduled for 2/2, which is Groundhog Day. I’ve been telling people I hope it doesn’t mean I have to keep repeating my surgery! Now, it seems I keep repeating dental visits, too.

Later Monday, December 19, 2022 – the afternoon wasn’t as bad as I remembered partly because somehow, my root canal had closed up. The dentist said that was “good news and bad news” because I had saved myself from the full treatment today AND saved a bit of money – like $1000. I guess the bad news is if i ever get decay under my new crown, I won’t have any pain to let me know. Sounds like good news to me.

Interestingly, the beginning of the crown the muted tv was showing the same program as the tv at reject-dentist. Maybe there’s a Dental TV station?

My next dentist thing is “just” a cleaning on December 28 and a tentative permanent crown on January 3.

Hopefully, no more knee related issues until then.

Meanwhile, it’s Wednesday night and Reject-Dentist still hasn’t sent a treatment plan or called to discuss it yet.

This post is officially done…for now