Help us strengthen the rare disease community’s voice on Capitol Hill! Please take 3 minutes to ask your Member of Congress to join the Rare Disease Caucus at http://bit.ly/RareAlert.
It’s easy – the Action Center has a draft letter that will automatically be sent to your Member of Congress – just put in your name and address & click send. We also encourage you to personalize the letter to share information about your specific disease. If your Congress Member is already on the Caucus, the letter will automatically populate as a thank you letter instead – these are just as important to send!
It can take up to 10 letters from constituents for a Member to respond so please share this Action Alert with your friends, family & colleagues. Join our Facebook event & invite your friends: http://on.fb.me/17Mlpjg
- In the US? Ask your Member of Congress to join the Rare Disease Congressional Caucus (cushieblog.com)
- Cushing’s Awareness Challenge, Day 1: Rare Disease Congressional Caucus Briefing (cushieblog.com)
- Cushing’s on Capitol Hill: Cushing’s Awareness Challenge (cushieblog.com)
- Rare Disease Day 2013 (seattledizzygroup.org)